- Title
- The cancer support person's unmet needs survey: psychometric properties
- Creator
- Campbell, H. Sharon; Sanson-Fisher, Rob; Taylor-Brown, Jill; Hayward, Lynda; Wang, X. Sunny; Turner, Donna
- Relation
- Cancer Vol. 115, Issue 14, p. 3351-3359
- Publisher Link
- http://dx.doi.org/10.1002/cncr.24386
- Publisher
- John Wiley & Sons
- Resource Type
- journal article
- Date
- 2009
- Description
- Background: A rigorous psychometric methodology was used to develop a measure of unmet needs for cancer survivors' principal support persons. Principal support person was defined as "someone you can count on and who helps you with your needs." Methods: Development of the domains and the items followed an extensive literature review, iterative input from support persons, and consultation with health professionals and front-line staff working with cancer survivors and their supports. Cognitive interviews helped clarify item wording, and the draft questionnaire was reappraised by a group of support persons. The questionnaire was reduced to 90 items and sent to a stratified, random sample of cancer survivors selected from a provincial population-based cancer registry. They were asked to give the survey to their support person. Results: The resulting 78-item Support Person Unmet Needs Survey has high acceptability, item test-retest reliability, internal consistency (Chronbach alpha = .990), and face, content, and construct validity. It captures 6 domains of unmet needs and accounts for 73.5% of total variance: Information and Relationship Needs (27 items, 22.1% of variance), Emotional Needs (16 items, 15.2%), Personal Needs (14 items, 14.0%), Work and Finance (8 items, 8.8%), Health Care Access and Continuity (9 items, 8.6%), and Worries About Future (4 items, 4.8%). Conclusions: This instrument will be of use where there is an interest in examining the impact of cancer not only on cancer survivors but also on their identified principal support persons.
- Subject
- oncology; caregivers; survivorship; unmet needs; neoplasms
- Identifier
- http://hdl.handle.net/1959.13/917163
- Identifier
- uon:8245
- Identifier
- ISSN:0008-543X
- Language
- eng
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