- Title
- A patient-centred approach to determine optimal supportive care across the cancer trajectory: a cross-sectional study
- Creator
- Turon, Heidi; Hill, David; Watson, Rochelle; Hobden, Breanne; Millar, Jeremy; Sanson-Fisher, Rob
- Relation
- European Journal of Cancer Care Vol. 30, Issue 5, no. e13455
- Publisher Link
- http://dx.doi.org/10.1111/ecc.13455
- Publisher
- Wiley-Blackwell
- Resource Type
- journal article
- Date
- 2021
- Description
- Objective: Supportive care is recognised as an integral component of cancer care. To comprehensively improve supportive care and to inform policy, it is essential to examine consumer's views of health services. This study aimed to develop and test a patient-centred approach by measuring consumer perspectives on the importance of aspects of supportive care to determine what patients consider highest quality or ‘optimal’ care. Methods: A cross-sectional survey was conducted in oncology outpatient clinics. Eligible patients were invited to complete the optimal care survey on an iPad. The survey consisted of 69 items assessing 14 care domains across five phases of the care trajectory. Results: A total of 359 participants completed the survey. Items in the ‘preparation for treatment’ and ‘follow-up and end-of-life care’ phases were endorsed as very important/essential to optimal care by most participants (79–97% and 80–100%, respectively). Items in the ‘preparation for first appointment’ (48–84%), ‘first appointment’ (51–97%) and ‘receiving treatment’ (32–93%) phases showed greater variation in endorsement. Conclusion: This study provides a patient-centred tool for quantifying optimal supportive care for people with cancer across the treatment trajectory. This tool could be used by healthcare providers to evaluate existing care quality, develop policies and guide clinical service improvements.
- Subject
- cross-sectional studies; oncology service; hospital; patient-centred care; quality of healthcare; psycho-oncology; SDG 3; Sustainable Development Goals
- Identifier
- http://hdl.handle.net/1959.13/1473510
- Identifier
- uon:49045
- Identifier
- ISSN:0961-5423
- Rights
- Turon, Heidi; Hill, David; Watson, Rochelle; Hobden, Breanne; Millar, Jeremy; Sanson-Fisher, Rob. “A patient-centred approach to determine optimal supportive care across the cancer trajectory: a cross-sectional study”. European Journal of Cancer Care Vol. 30, Issue 5, no. e13455 (2021), which has been published in final form at http://dx.doi.org/10.1111/ecc.13455. This article may be used for non-commercial purposes in accordance with Wiley Terms and Conditions for Use of Self-Archived Versions. This article may not be enhanced, enriched or otherwise transformed into a derivative work, without express permission from Wiley or by statutory rights under applicable legislation. Copyright notices must not be removed, obscured or modified. The article must be linked to Wiley’s version of record on Wiley Online Library and any embedding, framing or otherwise making available the article or pages thereof by third parties from platforms, services and websites other than Wiley Online Library must be prohibited.
- Language
- eng
- Full Text
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