- Title
- Advance care planning participation by people with dementia: A cross-sectional survey and medical record audit
- Creator
- Bryant, Jamie; Sellars, Marcus; Waller, Amy; Detering, Karen; Sinclair, Craig; Ruseckaite, Rasa; White, Ben; Nolte, Linda
- Relation
- BMJ Supportive and Palliative Care Vol. 12, Issue 3, p. e464-e468
- Publisher Link
- http://dx.doi.org/10.1136/bmjspcare-2020-002550
- Publisher
- BMJ Group
- Resource Type
- journal article
- Date
- 2021
- Description
- Objectives: To describe among individuals with dementia: (1) self-reported awareness of, and engagement in, advance care planning; (2) presence of advance care planning documentation in the health record and (3) concordance between self-reported completion of advance care planning and presence of documentation in the health record. Methods: An Australian prospective multicentre audit and cross-sectional survey. Individuals diagnosed with dementia who were able to speak English and were judged by a healthcare provider as having decision-making capacity were recruited from self-selected hospitals, residential aged care facilities and general practices across Australia. Results: Fifty-two people with dementia completed surveys and were included. Overall, 59.6% of participants had heard about advance care planning and 55.8% had discussed advance care planning with someone, most often a family member (48.1%). While 38.5% of participants had appointed a medical substitute decision maker, only 26.9% reported that they had written down their values and preferences for future care. Concordance between self-reported completion of advance care planning and presence of documentation in the health record was low (56.8%, κ=0.139; 57.7%, κ=0.053). Conclusion: Effective models that promote discussion, documentation and accessible storage of advance care planning documents for people with dementia are needed.
- Subject
- dementia; cross-sectional survey; medical record audit; advance care planning
- Identifier
- http://hdl.handle.net/1959.13/1448411
- Identifier
- uon:43404
- Identifier
- ISSN:2045-435X
- Rights
- This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.
- Language
- eng
- Full Text
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