- Title
- Getting the right fit: Convergence between preferred and perceived involvement in treatment decision making among medical oncology outpatients
- Creator
- Mansfield, Elise; Bryant, Jamie; Carey, Mariko; Turon, Heidi; Henskens, Frans; Grady, Alice
- Relation
- NHMRC.1073031 http://purl.org/au-research/grants/nhmrc/1073031 | NHMRC|1010536 http://purl.org/au-research/grants/nhmrc/1010536 | NHMRC|1105809 http://purl.org/au-research/grants/nhmrc/1105809C.
- Relation
- Health Science Reports Vol. 2, Issue 1
- Publisher Link
- http://dx.doi.org/10.1002/hsr2.101
- Publisher
- Wiley
- Resource Type
- journal article
- Date
- 2019
- Description
- Background and Aims:While cancer patients' preferences for their level of involvement in treatment decision making (TDM) vary, previous research indicates a large proportion of patients are not experiencing TDM that meets their preferences. Evidence is needed to identify the characteristics of cancer patients who are less likely to report experiencing their preferred level of involvement in TDM, so that appropriate decision-making support can be provided to them. We examined in a sample of medical oncology outpatients (1) the level of agreement between preferred and perceived involvement in TDM and (2) demographic, psychological, disease, and treatment characteristics associated with having unmet preferences for involvement in TDM. Methods and Results:Cancer patients from three medical oncology treatment centers in Australia completed surveys assessing demographic, disease and treatment variables, psychological distress, and preferred and perceived involvement in TDM. Data were collected between February 2013 and December 2014. Factors associated with having unmet TDM preferences were examined using logistic regression. There were 355 patients included in the analysis (75% response rate). The mean age (±SD) of the participants was 61 (±12), and 45% were male. Overall, 60% of participants reported that their preferences for involvement in TDM were met. No demographic, psychological, disease, or treatment characteristics were significantly associated with an increased probability of not having TDM preferences met. Conclusions:In line with previous research, a large proportion (40%) of patients reported TDM experiences that were not in alignment with their preferences. Future research should explore additional characteristics that are associated with a lower likelihood of having TDM preferences met.
- Subject
- cancer; patient preferences; patient-centred care; treatment decision making
- Identifier
- http://hdl.handle.net/1959.13/1415430
- Identifier
- uon:36907
- Identifier
- ISSN:2398-8835
- Rights
- This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. © 2018 The Authors. Health Science Reports published by Wiley Periodicals, Inc.
- Language
- eng
- Full Text
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