- Title
- Quality versus quantity in end-of-life choices of cancer patients and support persons: a discrete choice experiment
- Creator
- Waller, Amy; Sanson-Fisher, Rob; Brown, Scott D.; Walsh, Justin
- Relation
- NHMRC.1059760 http://purl.org/au-research/grants/nhmrc/1059760
- Relation
- Supportive Care in Cancer Vol. 26, Issue 10, pp 3593–3599
- Publisher Link
- http://dx.doi.org/10.1007/s00520-018-4226-x
- Publisher
- Springer
- Resource Type
- journal article
- Date
- 2018
- Description
- Objectives: To explore in a sample of medical oncology outpatients and their nominated support persons (SPs): (1) the relative influence of pain, consciousness and life extension on end-of-life choices using a discrete choice experiment (DCE); (2) the extent to which SPs can predict the choices of index patients and (3) whether having a previous end-of-life discussion was associated with dyad agreement. Methods: Adult medical oncology patients and their SPs were approached for consent to complete a survey containing a DCE. Participants chose between three unlabelled care scenarios characterised by three attributes: pain (mild, moderate or severe), consciousness (some, half or most of time) and extension of life (1, 2 or 3 weeks). Respondents selected (1) most-preferred and (2) least-preferred scenarios within each question. SPs answered the same questions but from patient’s perspective. Results: A total of 110 patients and 64 SPs responded overall (42 matched patient-SP dyads). For patients, pain was the most influential predictor of most- and least-preferred scenarios (z = 12.5 and z = 12.9). For SPs, pain was the only significant predictor of most and least-preferred scenarios (z = 9.7 and z = 11.5). Dyad agreement was greater for choices about least- (69%) compared to most-preferred scenarios (55%). Agreement was slightly higher for dyads reporting a previous EOL discussion (68 versus 48%; p = 0.065). Conclusion: Patients and SPs place significant value on avoiding severe pain when making end-of-life choices, over and above level of consciousness or life extension. People’s views about end-of-life scenarios they most as well as least prefer should be sought.
- Subject
- discrete choice experiment; end-of-life care; oncology; advance care planning; caregiver; SDG 3; Sustainable Development Goals
- Identifier
- http://hdl.handle.net/1959.13/1385374
- Identifier
- uon:32216
- Identifier
- ISSN:0941-4355
- Rights
- This is the peer reviewed version of the following article: ‘Quality versus quantity in end-of-life choices of cancer patients and support persons: a discrete choice experiment.’ which has been published in final form at http://dx.doi.org/10.1007/s00520-018-4226-x.
- Language
- eng
- Full Text
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