- Title
- Two studies on Twitter networks and tweet content in relation to amyotrophic lateral sclerosis (ALS): conversation, information, and 'diary of a daily life'
- Creator
- Hemsley, Bronwyn; Palmer, Stuart
- Relation
- Studies in Health Technology and Informatics Vol. 227, p. 41-47
- Publisher Link
- http://dx.doi.org/10.3233/978-1-61499-666-8-41
- Publisher
- IOS Press
- Resource Type
- journal article
- Date
- 2016
- Description
- To date, there is no research examining how adults with Amyotrophic Lateral Sclerosis (ALS) or Motor Neurone Disease (MND) and severe communication disability use Twitter, nor the use of Twitter in relation to ALS/MND beyond its use for fundraising and raising awareness. In this paper we (a) outline a rationale for the use of Twitter as a method of communication and information exchange for adults with ALS/MND, (b) detail multiple qualitative and quantitative methods used to analyse Twitter networks and tweet content in the our studies, and (c) present the results of two studies designed to provide insights on the use of Twitter by an adult with ALS/MND and by #ALS and #MND hashtag communities in Twitter. We will also discuss findings across the studies, implications for health service providers in Twitter, and directions for future Twitter research in relation to ALS/MND.
- Subject
- Twitter; tweet content; Amyotrophic Lateral Sclerosis; Motor Neurone Disease; severe communication disability; Twitter research
- Identifier
- http://hdl.handle.net/1959.13/1324785
- Identifier
- uon:25122
- Identifier
- ISSN:0926-9630
- Rights
- © 2016 The authors and IOS Press. This article is published online with Open Access by IOS Press and distributed under the terms of the Creative Commons Attribution Non-Commercial License 4.0 (CC BY-NC 4.0).
- Language
- eng
- Full Text
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