https://nova.newcastle.edu.au/vital/access/manager/Index ${session.getAttribute("locale")} 5 https://nova.newcastle.edu.au/vital/access/manager/Repository/uon:26300 Wed 11 Apr 2018 15:34:08 AEST ]]> https://nova.newcastle.edu.au/vital/access/manager/Repository/uon:27430 Wed 11 Apr 2018 15:03:30 AEST ]]> https://nova.newcastle.edu.au/vital/access/manager/Repository/uon:22482 Wed 11 Apr 2018 14:23:19 AEST ]]> https://nova.newcastle.edu.au/vital/access/manager/Repository/uon:13433 Wed 11 Apr 2018 10:01:56 AEST ]]> https://nova.newcastle.edu.au/vital/access/manager/Repository/uon:26312 Wed 10 Nov 2021 15:14:33 AEDT ]]> https://nova.newcastle.edu.au/vital/access/manager/Repository/uon:33795 Complex parental distress and growth overarching six subordinate themes. Themes describe the psychological and emotional unpredictability that was relentless in daily life whilst parenting a child diagnosed with ASD complicated by outbursts of aggressive behaviour. Anticipation of potentially traumatic events was expressed as constant. The powerful emotions of frustration, empathy, pity and an intense need to protect the child with ASD who displays aggression were in contrast with felt stigma and societal criticism. In time, they developed their own pragmatic survival strategies for functioning as a family that could accommodate each family member’s needs as much as possible. Psychological well-being became a balance of striving for personal psychological growth despite the constancy of anticipatory traumatic events. Future research and implications are discussed.]]> Tue 15 Jan 2019 15:32:03 AEDT ]]> https://nova.newcastle.edu.au/vital/access/manager/Repository/uon:27429 Tue 11 Dec 2018 15:19:48 AEDT ]]> https://nova.newcastle.edu.au/vital/access/manager/Repository/uon:26322 Sat 24 Mar 2018 07:24:11 AEDT ]]> https://nova.newcastle.edu.au/vital/access/manager/Repository/uon:25951 Dementia naiveté; redefined intimacy, overarched Embarrassed shame; Maintaining hope; Redefining a model of intimacy; and Redefined relational intimacy and growth. Within these themes, the participants shed light on hurtful embarrassment and shame experienced by families associated with the diagnostic label given to a loved one. This label was perceived to either trigger separation, hurt and immobility through ignorance, or precipitate a frenzy of naive yet hopeful energy for seeking that elusive cure. The participants saw their role as one of enacting a new way of connecting what was with what could be. Thus, they modelled advocacy, integral care and relational intimacy. Validation came in witnessing a redefining of intimacy in many families who were able to embrace that holistic and empathic approach to the shifting presentation of dementia. Psychological well-being was observed to occur when families embraced growthful domains, e.g. acceptance, hope, relational closeness and altruistic concern for other families. Implications for future care models are discussed.]]> Mon 23 Sep 2019 13:58:06 AEST ]]> https://nova.newcastle.edu.au/vital/access/manager/Repository/uon:49438 Mon 15 May 2023 13:58:08 AEST ]]>