https://nova.newcastle.edu.au/vital/access/manager/Index ${session.getAttribute("locale")} 5 https://nova.newcastle.edu.au/vital/access/manager/Repository/uon:26300 Wed 11 Apr 2018 15:34:08 AEST ]]> https://nova.newcastle.edu.au/vital/access/manager/Repository/uon:27430 Wed 11 Apr 2018 15:03:30 AEST ]]> https://nova.newcastle.edu.au/vital/access/manager/Repository/uon:26312 Wed 10 Nov 2021 15:14:33 AEDT ]]> https://nova.newcastle.edu.au/vital/access/manager/Repository/uon:27429 Tue 11 Dec 2018 15:19:48 AEDT ]]> https://nova.newcastle.edu.au/vital/access/manager/Repository/uon:25951 Dementia naiveté; redefined intimacy, overarched Embarrassed shame; Maintaining hope; Redefining a model of intimacy; and Redefined relational intimacy and growth. Within these themes, the participants shed light on hurtful embarrassment and shame experienced by families associated with the diagnostic label given to a loved one. This label was perceived to either trigger separation, hurt and immobility through ignorance, or precipitate a frenzy of naive yet hopeful energy for seeking that elusive cure. The participants saw their role as one of enacting a new way of connecting what was with what could be. Thus, they modelled advocacy, integral care and relational intimacy. Validation came in witnessing a redefining of intimacy in many families who were able to embrace that holistic and empathic approach to the shifting presentation of dementia. Psychological well-being was observed to occur when families embraced growthful domains, e.g. acceptance, hope, relational closeness and altruistic concern for other families. Implications for future care models are discussed.]]> Mon 23 Sep 2019 13:58:06 AEST ]]>